Comments for The Accidental Amazon http://accidentalamazon.com/blog life is what happens when we're making other plans Sun, 20 May 2012 15:37:59 +0000 hourly 1 http://wordpress.org/?v=3.3.2 Comment on Radiation, The Aftermath That Never Ends by GJ http://accidentalamazon.com/blog/2012/03/21/radiation-the-aftermath-that-never-ends/comment-page-1/#comment-72356 GJ Sun, 20 May 2012 15:37:59 +0000 http://accidentalamazon.com/blog/?p=9655#comment-72356 Although I hadn't read this post and wasn't aware of some of the SEs you mention, I was aware of plenty of potential SEs. Like Playnice, I had only a single stage 0 lesion and I thought WBI was overkill. My BS told me about IORT and that's what I opted for. There were some short term SEs like fatigue, and I still get some soreness but that have occurred from surgery alone. That's all. Time will tell if IORT was "enough" but I was comfortable with my decision. Not everyone qualifies for IORT but for those who do, IMO it's worth seeking out. Although I hadn’t read this post and wasn’t aware of some of the SEs you mention, I was aware of plenty of potential SEs. Like Playnice, I had only a single stage 0 lesion and I thought WBI was overkill.

My BS told me about IORT and that’s what I opted for. There were some short term SEs like fatigue, and I still get some soreness but that have occurred from surgery alone. That’s all.

Time will tell if IORT was “enough” but I was comfortable with my decision. Not everyone qualifies for IORT but for those who do, IMO it’s worth seeking out.

]]> Comment on Radiation, The Aftermath That Never Ends by Cindy Graeff http://accidentalamazon.com/blog/2012/03/21/radiation-the-aftermath-that-never-ends/comment-page-1/#comment-72352 Cindy Graeff Sun, 20 May 2012 13:45:17 +0000 http://accidentalamazon.com/blog/?p=9655#comment-72352 Thank you Kathi.... I too wish I had the kind of info we are able to share now through social media. I would have made a different decision when it came to the rads for the BC. My BC was a direct result of full mantle radiation treatments received in 1983 for Hodgkins Lymphoma. The overlap of additional radiation for the BC burned my brachial plexus. Leaving my right hand and arm useless, and with extreme nerve pain, stinging, burning, tingling, stabbing......never stops, day/night... Is even part of my dreams... And of course many other good cells were damaged, leaving multiple other problems, issues and lots of pain and weakness. Damaged my heart and lungs. I even went through a lung resectioning because of false spots/scars seen from the rads. It was not lung cancer as they automatically assumed. That surgery was 100 times more painful than my double mastectomy. And has left behind it's additional scaring problems. So.... We are all able to post our experiences for others to read and research prior to deciding on treatments. And your blog is the best I have found. I know you have helped many. The more we all share our experiences the more we can educate those unfortunate newbies to the hate crimes of cancer and it's treatments. Much love and thanks to you Kathi!! Stay strong, Cindy Thank you Kathi…. I too wish I had the kind of info we are able to share now through social media. I would have made a different decision when it came to the rads for the BC. My BC was a direct result of full mantle radiation treatments received in 1983 for Hodgkins Lymphoma. The overlap of additional radiation for the BC burned my brachial plexus. Leaving my right hand and arm useless, and with extreme nerve pain, stinging, burning, tingling, stabbing……never stops, day/night… Is even part of my dreams… And of course many other good cells were damaged, leaving multiple other problems, issues and lots of pain and weakness. Damaged my heart and lungs. I even went through a lung resectioning because of false spots/scars seen from the rads. It was not lung cancer as they automatically assumed. That surgery was 100 times more painful than my double mastectomy. And has left behind it’s additional scaring problems. So…. We are all able to post our experiences for others to read and research prior to deciding on treatments. And your blog is the best I have found. I know you have helped many. The more we all share our experiences the more we can educate those unfortunate newbies to the hate crimes of cancer and it’s treatments.
Much love and thanks to you Kathi!!
Stay strong,
Cindy

]]> Comment on Radiation, The Aftermath That Never Ends by Playnice http://accidentalamazon.com/blog/2012/03/21/radiation-the-aftermath-that-never-ends/comment-page-1/#comment-72350 Playnice Sun, 20 May 2012 03:17:44 +0000 http://accidentalamazon.com/blog/?p=9655#comment-72350 Thanks Kathi, I will ask about the Vancouver protocol as well as Van Nuys Prognostic Index, which I found about in another blog https://sites.google.com/site/dciswithoutrads/van-nuys-prognostic-index . It looks like in same cases radiation treatment is not needed as there is a very low risk of reoccurring and there are a number of other factors to consider before treating everyone with radiation. Will do some more digging and will share if I come across more useful information. Keep spreading the word and build awareness. I'm lucky I come across your blog in time :-) Thanks Kathi,
I will ask about the Vancouver protocol as well as Van Nuys Prognostic Index, which I found about in another blog https://sites.google.com/site/dciswithoutrads/van-nuys-prognostic-index . It looks like in same cases radiation treatment is not needed as there is a very low risk of reoccurring and there are a number of other factors to consider before treating everyone with radiation.

Will do some more digging and will share if I come across more useful information.
Keep spreading the word and build awareness. I’m lucky I come across your blog in time :-)

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